Whole Genome Scans Could Reveal Too Much
When doctors run out of clues on how to treat a cancer patient, they sometimes order a scan of all the patient’s genes. But such a test can turn up unexpected results, such as greater risk of another disease. When are doctors obligated to tell the patient what they know? And do patients have the right not to know?
Hank Greely is a professor of law who teaches law and genetics at Stanford University in Stanford, California. He’s the author of The End of Sex and the Future of Human Reproduction (Harvard University Press, 2016).
Susan Wolf is the McKnight Presidential Professor of Law, Medicine & Public Policy and a principal investigator on an NIH grant on whether families have the right to an individuals’ genomic information at the University of Minnesota in Minneapolis, Minnesota.
Kelly Ormond is a certified genetic counselor and director of the genetic counseling training program at Stanford University in Stanford, California.
Pam Widick is a registered nurse and patient at the Mayo Clinic Center for Individualized Medicine in Webster City, Iowa.